Tuesday, October 13, 2009

Ask You to benefit Amyloidosis Research

October 17th marks our third Search for a Cure event in Chester, VT and we're hoping for clear skies, beautiful foliage and lots of warm and caring people to come out and help us raise money for Amyloidosis research.
Search for a Cure
is an event that was created back in 2006 by my life long friend Meredith Johnson and it has been successful in raising close to $10,000 for research and The Diflunisal Trial, a clinical investigation on the effects of Diflunisal on the production of Amyloid proteins in FAP patients (my sister and self included). After completing the trial back in June, I am on a regular prescription of the drug and if things go according to plan, I, along with my sister and many other Familial patients, should be able to avoid this deadly disease and long, harsh treatments.

Along with the scavenger hunt, I plan on generating some fundraising dollars by selling copies of Ask You at the event. I'm handmaking 50 sleeves that will contain a CD of Ask You and a bonus acoustic track of May, a song that once appeared on an album I did with Chad Macomber back in college. Like the monies raised from the search, all the proceeds from Ask You sales will go directly to the Boston University Treatment and Research Program to benefit The Diflunisal Trial. There will also be order forms available in case the CD sells out and participants are interested in purchasing more.

If you don't have plans on Saturday and would like to come out to help our cause, please visit: http://www.themayfund.org/searchforacure for more information on the event and how to register. It's a great and hopeful time for all.

1 comment:

  1. I haven't actually listened to the CD yet, but it fell out of my bag this morning, and has prompted much whistling and humming to myself this morning...